Issue No. 16 - August 5, 2013

Breaking News

FDA Gluten-Free Food Labeling Rule Published

Celiac Disease Foundation


10 Fast Facts about the FDA Gluten-Free Food Labeling Rule

Click here to read the CDF FAST FACTS.

Click here to read CDF's press release about the FDA rule.

CDF's Post-Rule Mission

The FDA's announcement about its gluten- free labeling rule, makes August 2, 2013, a historic day.

It was 2003 when CDF Founder Elaine Monarch joined with other community leaders to persuade Congress to enact the Food Allergen Labeling and Consumer Protection Act. A decade later, Americans requiring a gluten-free diet will now be assured that foods labeled "gluten-free" meet the similar standard established in Europe and Canada.

But the work does not stop here. With only 17% of those with celiac disease diagnosed, CDF Medical Advisory Board Member Dr. Peter Green, director of the Celiac Disease Center at Columbia University, states, "Adherence to the gluten-free diet reduces the increased mortality associated with the disease. We need to increase the rate of diagnosis of celiac disease in the United States. Celiac disease remains a public health issue and resources should be devoted to research into why the disease is so common yet so under-diagnosed."

CDF remains committed to driving diagnosis of celiac disease and other gluten- related disorders through advocacy, education, and advancing research so that all people requiring a gluten-free diet will be able to end their needless suffering.

About Us

Since its inception in 1990, Celiac Disease Foundation has been at the forefront of celiac disease education, awareness, advocacy and support services. Today, guided by its distinguished Medical Advisory Board, and supported by Chapters and Connections throughout the United States, CDF is meeting the growing public health challenge of increased diagnosis of celiac disease and non-celiac gluten sensitivity. With a range of vital programs and services for the public, patients, healthcare professionals and the food

industries, CDF remains dedicated to improving the quality of life for those diagnosed, yet to be diagnosed, and their families.

Stay Connected.

Celiac Disease Foundation | 818-716-1513 |

20350 Ventura Blvd

Ste 240

Woodland Hills, CA 91364

Copyright © 2013. All Rights Reserved.

Non GMO certified gluten free bread available locally at Kroger on shore drive, Organic Food Depot on Commuter Drive, and the Heritage Store, all in Virginia Beach.  

We have some exciting news to share with you.  Celiac Disease Foundation (CDF) has partnered with DirectoryMediaGroup (DMG) to create an on-line, one-of-its-kind resource directory for all things Gluten Free created specifically for the gluten-free community.  Please click on the link below and read the press release.

Please let me know if you have any questions or would like to discuss.  More information to follow….

Thank you for all you do for CDF in support of our mission.


Deborah J. Ceizler

Celiac Disease Foundation / Director of Marketing / 818-990-2354


New Product Spotlight: Amazingly Tasty Snack Mix.

From: Whitney Ehret []
Sent: Thursday, January 05, 2012 9:38 AM
Subject: Join a Critical Research Study: Gluten in Medications

Dear Support Group Leaders:

Last November, the National Foundation for Celiac Awareness (NFCA) announced that it would conduct a first-of-its-kind research study on gluten in medications, funded by the Food and Drug Administration (FDA). NFCA, partnering with St. John's University College of Pharmacy and Allied Health Professions, is conducting this research in two parts. The first part of the study is happening now: a survey of the celiac and gluten sensitive populations.

NFCA urges all people who are following a gluten-free diet to participate. Participants will be asked about their experiences taking medicine. They will also be asked to share information if they think they might have had a gluten-related reaction to an over-the-counter or prescription medicine.

Results from the survey will guide the second phase of the study: our team will test some of the medicines identified in the survey to see if they contain gluten.

This critically needed preliminary research aims to validate or nullify the anecdotal adverse experiences associated with gluten in medications that have been reported by people with celiac disease and gluten sensitivity. It is a first step to determine if more investigation is needed which may lead to additional research, labeling, and safe use guideline initiatives. More information about the Safe Use Initiative can be found at  

We are looking to generate as MANY responses as possible to strengthen our research. We need YOUR help in this effort. We ask that you circulate this message and invite all those who are gluten-free to complete this survey. You also can use the attached article in your organization’s newsletter.

To participate in the this survey, please go to The survey takes between 4-15 minutes to complete. It closes on February 28, 2012.

To learn more about Phase One of our Gluten in Medications research, visit NFCA’s website:

Questions? Contact Nancy Ginter at or at 215-325-1306, ext. 101Many thanks for your consideration and assistance.


The NFCA Team
restore health.
reclaim lives.
donate now»

whitney ehret
communications director
national foundation for celiac awareness (nfca)
p.o. box 544
ambler, pa 19002
215-325-1306 ext. 103

 TD Dining Cards Now Available on Android

Could your gluten-free restaurant experiences be better? Maybe you want to try some new restaurants but are leery of becoming ill? We are over-the-moon excited to let you know that our foreign language dining cards are now available on Android. The iPhone versions aren't far behind. This means that explaining your dietary restrictions to non-English speakers is only a click away.

The cards come in Italian, Greek, Vietnamese, Mexican, American, French, Chinese, Japanese, Indian and Thai versions. We've made Thai available for free download as a nod to our company's history, which began with a frustrating Thai restaurant dining experience.

Check them out 
here and let us know what you think. Be sure to download the free Thai version.
Subpages (1): Scientific Research
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CDF Chesapeake Celiacs,
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CDF Chesapeake Celiacs,
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CDF Chesapeake Celiacs,
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